We also participate in the Australian Lymphoma and related diseases registry.
Patients recently diagnosed with lymphoma at Sir Charles Gairdner Hospital will be included in the registry unless they choose not to participate. The following criteria must be met for a patient to be included:
- A new diagnosis of non-Hodgkin lymphoma, Hodgkin lymphoma, chronic lymphocytic leukaemia and related diseases
- Diagnosis after July 2016
- Age ≥18 years
Participation is voluntary and you can leave the registry at any time without affecting the treatment or care provided to you. It is important to note that your details will automatically be included in the registry unless you let us know that you do not want to participate.
To opt out please us +61 3 99030558 or email firstname.lastname@example.org.
The following information is routinely collected in clinical care and will be provided to the registry database:
- Name and date of birth
- Medical history and current health status
- Diagnosis and treatment details
The information and details collected will never be released and only used in a de-identified (anonymous) format for research purposes.